Archive for February 4th, 2013

  • The Day You Find Out Your Child Has Cancer

    This post is part one in an ongoing series of posts about my son Jude and his fight with cancer.
    Part 1 – The Day You Find Out Your Child Has Cancer
    Part 2 – A Goliath Named Neuroblastoma
    Part 3 – “The Tumor Was Not Resectable.”

    cmh-signWe had gone to the hospital, like so many other times before, to consult with a team of doctors and have more testing done. We knew in advance this time would be a little different. The plan was for our two-year-old son, Jude, to have a CT scan done and possibly admit him into the children’s hospital for a day or so in order to monitor his eating and bowel issues closely and try to pack some weight on him. It wasn’t the most convenient time to be planning a multiday stay at the hospital. My wife Ashlie was 8 ½ months pregnant with our second son, and I was afraid that he might be born any day. But we knew our lives were only going to become more hectic after he was born, so we were taking care of things now.

    For over a year, Jude had been struggling with severe gastrointestinal distress. He had a small appetite, and suffered from constant diarrhea. As first-time parents, we were understandably alarmed. Jude was checked out by our pediatrician, who then referred us to the Gastrointestinal Clinic in the hospital, the same hospital where my wife was employed as a pediatric ICU nurse. Although they couldn’t pin down exactly what was wrong, they were pretty sure it was simply a bad case of “toddler’s diarrhea” or possibly a hard-to-diagnose food allergy. And so this dance went on: we’d visit the hospital and meet with a team of specialists who would recommend new diet restrictions and feeding schedules in order to isolate the problem, and after a few weeks of seeing no change we’d come back and meet with a new group of specialists who’d make their own recommendations. Nobody seemed terribly alarmed, and so we tried to not be neurotic parents and trust the doctors knew what they were doing.

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